National Awareness Campaign Bringing Attention To A Rare Lung Disease

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National Campaign Highlights Rare Lung Disease


Raising Awareness for Pulmonary Arterial Hypertension


A groundbreaking national initiative, "Faces of PAH," is shining a spotlight on the often-overlooked pulmonary arterial hypertension (PAH). Spearheaded by the Pulmonary Hypertension Association (PHA), this campaign aims to elevate the profile of this rare and life-threatening lung disease in the United States.

Personal Stories and Expert Insights


"Faces of PAH" leverages the power of storytelling through a series of interviews involving PAH patients and leading doctors. Patient ambassadors share their personal experiences, while medical experts provide critical information on symptoms, diagnosis, and treatment options.

Understanding PAH


PAH is marked by high blood pressure in the lungs, arising from narrowed and stiffened blood vessels. This condition strains the heart as it works harder to pump blood, leading to enlargement and weakened function, eventually resulting in heart failure.

Key Symptoms Include:

- Breathlessness or shortness of breath
- Fatigue
- Dizziness
- Fainting spells
- Chest pain, particularly during physical activities
- Swollen ankles and legs

Although PAH affects hundreds of thousands globally, many remain undiagnosed and untreated. The disease can impact individuals of any age, but is most prevalent among women aged 20 to 40.

Increasing Understanding and Support


"Despite its severity, PAH is frequently misunderstood," noted Rino Aldrighetti, President of the Pulmonary Hypertension Association. "'Faces of PAH' will showcase the courageous journeys of patients and their families, aiming to foster greater awareness of this debilitating condition."

About the Pulmonary Hypertension Association


Based in Washington, D.C., the Pulmonary Hypertension Association is dedicated to finding a cure for pulmonary hypertension and supporting the community affected by it. The "Faces of PAH" campaign is funded by an unrestricted grant from Encysive Pharmaceuticals.

Through this initiative, the PHA hopes to bring crucial attention to PAH, potentially transforming lives by enhancing understanding and encouraging timely diagnosis and treatment.

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